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CONSUMER AFFAIRS BULLETIN
Volume 3, No. 1 Winter 1998

  • Walk the Walk
  • The Meaning of the Walk.
  • President's Advisory Commission Releases Consumer Bill of Rights
  • Consumer/Survivor-Directed Initiatives Pave the Road to Recovery
  • On the CMHS Front
  • Go With a Winner!
  • Welcome to New CMHS National Advisory Council Members
  • Community Building Highlights
  • New Free Consumer Health Information Service Available
  • Calendar
  • Consumer Conferences
  • Editor's Note
  • Where to Turn
  • Line

    Consumer/Survivor-Directed Initiatives Pave the Road to Recovery



    CMHS announced this fall a series of consumer/survivor-directed initiatives to pave the road to recovery from mental illness.

    Approximately twenty new initiatives are being supported in the following areas:

  • Consumer/survivor Training and Education
    - a training-of-trainers session to teach consumers/survivors on how to access and use the Internet.
    - a conference on the role that the arts plays in mental health and recovery.
  • Developing Effective Advocacy Skills
    - a pamphlet on how best to use grievance procedures in managed care environs.
    - a training curricula for consumers to develop self-advocacy skills.
    - a guide to filing complaints of employment discrimination.
  • Countering Stigma
    - a guidebook on addressing stigma in the media, an educational video on stigma, and the development of stigma workshop curricula.
  • Quality Assurance and Improvement
    - review of best practices for measuring consumer/survivor satisfaction and dissatisfaction with mental health services.
    - a how-to guide on organizing partnership dialogue meetings to develop collaborative relationships among various stakeholders.
  • Needs Identification and Analyses
    - a monograph examining the self-identified issues, needs, and experiences of lesbian, gay, bisexual, transgendered mental health consumers/survivors.
    - a similar monograph will examine these issues from the perspective of consumers/survivors with multiple disabilities.
    - a series of dialogue sessions and a resulting monograph on trauma issues.
  • Consumer/survivor-Operated Services
    - a report on European consumer/survivor initiatives and implications for USA consumer/survivor efforts.
    - an analysis of developing a network of consumer/survivor-operated services focusing on self-employment and consumer/survivor entrepreneurship.

    These efforts and others are part of a growing trend toward "patient-centered care" reported the August 1996 Harvard Health Letter published by the Harvard Medical Society. It cited research conducted by the Primary Care Outcomes Research Institute at New England Medical Center, Boston, Mass., which revealed that, in controlled trials, consumers who were informed and involved in their care had improved health.

    "Collectively, these projects represent what consumers are telling us is important to facilitate recovery," indicated CMHS Director Bernard S. Arons, M.D.
    "Many are now recognizing that consumer involvement goes beyond 'doing the right thing,'" added CMHS Consumer Affairs Specialist Paolo del Vecchio, "we now know that educated and involved consumers are necessary to achieve improved outcomes."


    CONSUMER AFFAIRS BULLETIN

    Vol. 3, No 1, Winter 1997

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